July 25th- off treatment for 2 days.
This past week has been crummy- even while still on meds. A lot of brain pressure, twitching, off balabce, random pains, tingling breaking through foot pain, etc. Started on Monday- the week AFTER my period again, there is a pattern that the week after my period seems to be when i feel my wrost- I guess that would be every 4 weeks or so??
Sunday, July 26, 2009
Sunday, June 28, 2009
Friday, June 26, 2009
June 26, day 63*********************
Last night I had some very intense vertigo/swirling along with some foot zapping/pain increase. Today I feel really run down/tired with tremendous swirling. I have a ton of brain fog and feel like im out of it. It's hard to type because my head is swirling too much. Twitching is up, backache(but could be from the new bed), my patience level is low-feel like a totally different person when feeling this "lymie" or whatever it is. All I want to do is sleep or put my head down to stop the swirling.
Last night I had some very intense vertigo/swirling along with some foot zapping/pain increase. Today I feel really run down/tired with tremendous swirling. I have a ton of brain fog and feel like im out of it. It's hard to type because my head is swirling too much. Twitching is up, backache(but could be from the new bed), my patience level is low-feel like a totally different person when feeling this "lymie" or whatever it is. All I want to do is sleep or put my head down to stop the swirling.
Thursday, June 25, 2009
June 25, day 62*******************************
feeling major dump in the energy dept. less clear brain for sure...foot stuff is breaking through more again(started 3 days ago) pain on the sides, itchy sides too..off balance is up..tingling sensations in spine-lower back and neck-burning spots in hands that come and go...still functioning but I can feel a MAJOR difference then last week..
feeling major dump in the energy dept. less clear brain for sure...foot stuff is breaking through more again(started 3 days ago) pain on the sides, itchy sides too..off balance is up..tingling sensations in spine-lower back and neck-burning spots in hands that come and go...still functioning but I can feel a MAJOR difference then last week..
Sunday, June 21, 2009
June 21st, Day 58- Father's Day *******not feeling well now that period has passed again?****
Felling "lymie" in the energy dept. Very tired can't seem to shake it. Off balance, wavy sensations been increased since getting my period but worse now that my period is over. Feet are under control, still there but under control from the severe stuff..
Felling "lymie" in the energy dept. Very tired can't seem to shake it. Off balance, wavy sensations been increased since getting my period but worse now that my period is over. Feet are under control, still there but under control from the severe stuff..
Sunday, June 14, 2009
Wednesday, June 10, 2009
Monday, June 8, 2009
June 8th, Day 45
Past 2 days foot issues have been better, not gone but better. changed meds to 600 at night and then 300 2X a day. Today, im feeling off balance again and stinging in my face, chin etc...my feet are burning and feel very sore...yesterday I felt far more tired then I hae been but later in the day my energy picked up..
some random aches in ankles, thighs, sore palms, sore fingers, sides of hands ache...but on a scale of 1-10 the pain is low...prob a 2..
Past 2 days foot issues have been better, not gone but better. changed meds to 600 at night and then 300 2X a day. Today, im feeling off balance again and stinging in my face, chin etc...my feet are burning and feel very sore...yesterday I felt far more tired then I hae been but later in the day my energy picked up..
some random aches in ankles, thighs, sore palms, sore fingers, sides of hands ache...but on a scale of 1-10 the pain is low...prob a 2..
Friday, June 5, 2009
Friday, June 5th day 42-
Still dealing with the feet problem. Took 2 300 mgs today and had ups and downs...now that it's night the pain is overwhelming again, just took a 600 mg-not seeing any relief
stabbing pains in my thigh off and on, sore plams, burning hands, backs of legs, face, chin...off balance once infusing..better after a while...
Foot problem is still the WORST issue by FAR. :(
Still dealing with the feet problem. Took 2 300 mgs today and had ups and downs...now that it's night the pain is overwhelming again, just took a 600 mg-not seeing any relief
stabbing pains in my thigh off and on, sore plams, burning hands, backs of legs, face, chin...off balance once infusing..better after a while...
Foot problem is still the WORST issue by FAR. :(
Thursday, June 4, 2009
Thursday, June 4th- Day 41
Foot stuff is still here. took more neurontin last night but since it's not helping a while lot, im getting off to see what happens. it is so depressing since I finally feel diminished symptoms everywhere else but can't really "feel" better because this is so painful. It's not just sore, it's burning, stabbing, sharp pains, etc. And it's around the clock. Getting some stabbing sensations in my hands too but only mild for now. Ocassionaly muscle aches but nothing to even think about , very mild. It's a sif all of my symptoms stopped so this one could take over.
Foot stuff is still here. took more neurontin last night but since it's not helping a while lot, im getting off to see what happens. it is so depressing since I finally feel diminished symptoms everywhere else but can't really "feel" better because this is so painful. It's not just sore, it's burning, stabbing, sharp pains, etc. And it's around the clock. Getting some stabbing sensations in my hands too but only mild for now. Ocassionaly muscle aches but nothing to even think about , very mild. It's a sif all of my symptoms stopped so this one could take over.
Sunday, May 31, 2009
May 31st, day 37
This is HELL. I can hardly take the pain in my feet. It has come back and broken through the meds AGAIN. :( It is unbearable and making me feel total despair. I don't think its a herx, I think it's something in my body that has changed. I have increased the neurotin and it's not working...
I am slightly off balance with some minor twitching...most other symptoms are either gone or just can't be felt over this level of pain. WTF!!!
This is HELL. I can hardly take the pain in my feet. It has come back and broken through the meds AGAIN. :( It is unbearable and making me feel total despair. I don't think its a herx, I think it's something in my body that has changed. I have increased the neurotin and it's not working...
I am slightly off balance with some minor twitching...most other symptoms are either gone or just can't be felt over this level of pain. WTF!!!
Wednesday, May 27, 2009
Wed, May 27th, Day 33 .**** another herx??***************
Feeling shitty. Foot stuff has been bothering me a lot, went back on neurontin full dose after pulling back a bit. feel very wavy, run down, tired. Some back pain, LOTS of confusions, buzzy feeling. Face burning, stinging, emotional. Noticing tummy problems..feeling bloated and uncomfortable, some cramping, burning...
Saw Dr. R today, she doesn't believe neuropathy encompasses wavy feeling..thinks it lyme related...doesn't feel IVIG would benefit me at all, said there is zero literature supporting its use at all..
Feeling shitty. Foot stuff has been bothering me a lot, went back on neurontin full dose after pulling back a bit. feel very wavy, run down, tired. Some back pain, LOTS of confusions, buzzy feeling. Face burning, stinging, emotional. Noticing tummy problems..feeling bloated and uncomfortable, some cramping, burning...
Saw Dr. R today, she doesn't believe neuropathy encompasses wavy feeling..thinks it lyme related...doesn't feel IVIG would benefit me at all, said there is zero literature supporting its use at all..
Monday, May 25, 2009
Mon, May 25th-Happy Birthday Brooke- #5:) Day 31
Wed-Sat, feeling great! No foot issues so I slowly backed off the nuerontin. Had full energy, almost no symptoms. I have noticed though that when I have my period lately, symptoms seem to be reduced. Cant be totally sure. Feet and waviness started bothering me again yesterday so I added back in Neurontin...stinks! They are both bothering me again now. Im starting to wonder if my remaining symtpoms arent totally neuropathy since they are both back once decreasing neuro meds. I do have twitching back as well...i am concerned im on antibiotics for nothing, there would bo no reason if it's all neuropathy.
Wed-Sat, feeling great! No foot issues so I slowly backed off the nuerontin. Had full energy, almost no symptoms. I have noticed though that when I have my period lately, symptoms seem to be reduced. Cant be totally sure. Feet and waviness started bothering me again yesterday so I added back in Neurontin...stinks! They are both bothering me again now. Im starting to wonder if my remaining symtpoms arent totally neuropathy since they are both back once decreasing neuro meds. I do have twitching back as well...i am concerned im on antibiotics for nothing, there would bo no reason if it's all neuropathy.
Tuesday, May 19, 2009
Tues, May 19th, Day 25 **********************************************
Noticing overall energy increase...feeling a lot less wavy and run down overall...feeling a bit more "normal" these days. If it weren't for the foot thing, I'd be at 90%. Dare I say it...
The foot thing is still scary but it's under control for the moment with the nuerontin...i'll take it! Some off balance/wavy sensations now, minor twitching today...still some back of the knee pain...but nothing to speak of(scale of 1-10, i would rate it a 2). Felt great playing with the kids the past coulpe of days, I feel so much more connected and able to be the fun mommy I have inside of me but can't normally be to the besy of my ability. My head has just felt more clear? Huh. Lets see how tomorrow goes...
Noticing overall energy increase...feeling a lot less wavy and run down overall...feeling a bit more "normal" these days. If it weren't for the foot thing, I'd be at 90%. Dare I say it...
The foot thing is still scary but it's under control for the moment with the nuerontin...i'll take it! Some off balance/wavy sensations now, minor twitching today...still some back of the knee pain...but nothing to speak of(scale of 1-10, i would rate it a 2). Felt great playing with the kids the past coulpe of days, I feel so much more connected and able to be the fun mommy I have inside of me but can't normally be to the besy of my ability. My head has just felt more clear? Huh. Lets see how tomorrow goes...
Monday, May 18, 2009
Mon, May18th- Day 24
SO premenstrual, irritable...horrible stiff neck and back upon waking, took ibuprofen for pain-worked well. Leg felt better as the day went on, still having some sensations in my feet:( they are sore...pains in right calf?? random tingles, prickling...
after infusion the pain behind my knee is back??? sore feet, need to take nighttime nuerontin
no waviness to speak of..still twitching...
SO premenstrual, irritable...horrible stiff neck and back upon waking, took ibuprofen for pain-worked well. Leg felt better as the day went on, still having some sensations in my feet:( they are sore...pains in right calf?? random tingles, prickling...
after infusion the pain behind my knee is back??? sore feet, need to take nighttime nuerontin
no waviness to speak of..still twitching...
Thursday, May 14, 2009
Thursday, May 14th- Day 2o
Pain in feet is back. Burning, pinching, etc. Not a 10 on pain scale but getting there. I took 150 in the am 150 at lunch and now 300 at mid day. Still feeling pain/burning, pinching/cold. SO frustrating!!!!!!!!!!!!!!!!!! Nothing is helping :(
Pain in palms, twitching, vibrating, buzzing, sore fingers, lower back is sore, wavy, dizzy at times
Pain in feet is back. Burning, pinching, etc. Not a 10 on pain scale but getting there. I took 150 in the am 150 at lunch and now 300 at mid day. Still feeling pain/burning, pinching/cold. SO frustrating!!!!!!!!!!!!!!!!!! Nothing is helping :(
Pain in palms, twitching, vibrating, buzzing, sore fingers, lower back is sore, wavy, dizzy at times
Wed, May 13th, day 19
Feet were doing well from Neurontin (or so it seemed) for ONE day. Took 150 in the am but by 4, the sensations started to return. took 300 before bed, woke up at midnight with the pain again. This foot problem is taking over my life. Random pains all over, sore palms, wrists. Foot pain is by far the worst of my symptoms right now.
Feet were doing well from Neurontin (or so it seemed) for ONE day. Took 150 in the am but by 4, the sensations started to return. took 300 before bed, woke up at midnight with the pain again. This foot problem is taking over my life. Random pains all over, sore palms, wrists. Foot pain is by far the worst of my symptoms right now.
Tuesday, May 12, 2009
Tues, May 12th- day 18
Awful, awful, awful. The foot pain got incredible last night- I couldnt sleep at all...im in a full on panic. Took a neurontin around 1:30 am. Jamie was up for 2 hours as well, im beyond exhausted. This morning my feet still burn and im getting itchy all over. My hands are tingling now too. I'm very off balance/wavy but prob from lack of sleep ,neurontin and whatever my issue is.
foot pain was bothersome but not as bad as last night- feeling tingles/pricks in hands along with very sore heels of my hands? SO WEIRD! Took a small portion of neurontin late afternoon and it seemed to dull the pain. Did infusion, went fine- brain waves right after. Still feeling wavy, took 300 mg neurontin now...
Awful, awful, awful. The foot pain got incredible last night- I couldnt sleep at all...im in a full on panic. Took a neurontin around 1:30 am. Jamie was up for 2 hours as well, im beyond exhausted. This morning my feet still burn and im getting itchy all over. My hands are tingling now too. I'm very off balance/wavy but prob from lack of sleep ,neurontin and whatever my issue is.
foot pain was bothersome but not as bad as last night- feeling tingles/pricks in hands along with very sore heels of my hands? SO WEIRD! Took a small portion of neurontin late afternoon and it seemed to dull the pain. Did infusion, went fine- brain waves right after. Still feeling wavy, took 300 mg neurontin now...
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